by Soazig Clifton, NatCen
Research ethics is not just about securing approval from a committee – it’s about making sure your fieldworkers are prepared for anything, and that you can keep the promises that you make to participants.
At a workshop held by the NIHR School for Social Care Research (in collaboration with SCIE, SCREC and SSRG) in March, one of the organisers commented that the very words ‘ethics committee’ can make a researcher start rolling their eyes. I think that a lot of us can sympathise with this – we just want to get on with our research project and make sure it is successful, and can sometimes feel that the committee will somehow be out to thwart our well laid plans.
But submitting an application to an ethics committee is a valuable opportunity to really think about the ethical implications of your study design.
How will you balance making sure people are fully informed before they take part with not overloading them with information and putting them off entirely?
Do the potential benefits to society that will come from your findings outweigh any distress or discomfort that could come to those who take part?
These are some of the things you need to think about when you are preparing your ethics application and you will have the opportunity to discuss them in the committee meeting. It doesn’t stop there though.
As a quantitative researcher at NatCen Social Research, an important part of my job is to make sure that good ethical practice permeates the working culture of everyone involved in the project, at all stages. On our large-scale surveys we might have hundreds of interviewers working independently around Britain at any one point in time.
We typically conduct interviews in participants’ homes. The research topics can be sensitive, and the interviews are usually detailed. Participants are giving up valuable time to take part in the research. Among many other things they need to know that their contribution is important, that they don’t have to do anything they don’t want to, and that their answers will be treated confidentially.
Difficult questions
Is it ever ok to ask people about topics that are likely to upset them? What should an interviewer do if someone becomes upset?
What if an interviewer sees or hears something during the interview that gives them cause for concern about the participants’ safety? Or about the safety of others in their home? Is it ever ok to break the promise of confidentiality?
No easy answers
NatCen’s basic interviewer training covers all of the above points, and more. But there’s no black-and-white answer to these questions, and in fact there was much disagreement within the group of researchers who were at the ethics workshop. This is not surprising given that the audience represented a range of different professions within social care, carrying out different types of research. What’s important is that everyone involved in a research project understands where their own organisation stands on these issues. This means that no field worker is left having to make complex decisions unsupported, and importantly the welfare of participants is not left to chance.
It doesn’t matter whether you are a team of two carrying out ten research interviews, or have an army of fieldworkers interviewing 40,000 people: the principles are the same. Anyone conducting fieldwork needs to have the knowledge and confidence to deal with any difficult situations as they happen, and have the right support afterwards. So if you don’t already have answers to the questions above, it’s time to start thinking about them.
For information about the Social Care Research Ethics Committee: http://www.screc.org.uk/
For information about the Integrated Research Application System (IRAS): https://www.myresearchproject.org.uk/
For presentations from the NIHR School for Social Care Research’s Ethics workshop, including Soazig’s: http://www2.lse.ac.uk/LSEHealthAndSocialCare/events/SSCR-Ethics-Workshop.aspx


